PAR Offers Resources, Networking

ATS 2019 attendees will be able to talk to patients and patient advocates at 14 Public Advisory Roundtable (PAR) booths. 

“PAR can plug clinicians, especially those caring for a patient with a rare lung condition, into a bigger network and support system,” said Jeremy Richards, MD, ATSF, chair of the ATS Members in Training and Transition Committee. 

For the second year, participants in the Student Scholars Program will meet in small groups with the PAR representatives in the Exhibit Hall on Sunday.   

 “The students learn not only how these groups enhance patient empowerment, but also how these groups promote early career development and research,” said Donna Appell, RN, executive director and founder of the Hermansky-Pudlak Syndrome Network, a PAR member.

PAR in the Exhibit Hall

At ATS 2019, you will be able to learn more about these patient interest groups:

  • Allergy & Asthma Network
  • ARDS Foundation
  • Children’s Interstitial Lung Disease Foundation, Inc.
  • Foundation for Sarcoidosis Research
  • Hermansky-Pudlak Syndrome
  • The LAM Foundation
  • Lung Transplant Foundation
  • LUNGevity Foundation
  • NTM Info and Research
  • Pulmonary Fibrosis Foundation
  • Primary Ciliary Dyskinesia Foundation (PCD)
  • Scleroderma Foundation
  • Tuberous Sclerosis Alliance