Patient Groups Shine Light on Lung Diseases

Will Lewis, MD, Insmed president and CEO, and his company celebrate the artistry of patients from around the world.

Patient-interest organizations provide hope and help to patients and their families while driving awareness and research. Visit these booths in the Exhibit Hall to learn more about their work and the resources they can offer your patients.

Pulmonary Fibrosis Foundation, Booth 1205
The Pulmonary Fibrosis Foundation provides many free educational materials, including “Pulmonary Fibrosis Information Guide” (now available in Spanish), “Disease Awareness Brochure,” and “Support Group Leader Guide.” The new “Oxygen Brochure” is a basic guide for patients starting oxygen therapy. PFF will ship materials free of charge to all attendees worldwide.

Learn even more about PF at the PFF Summit 2017, Nov. 9‒11, in Nashville, Tennessee. The Summit provides an unparalleled opportunity to meet with physicians, researchers, patients, caregivers, industry representatives, and members of the international PF community, and earn CME credits. Visit Booth 1205 to find out how to submit abstracts for presentation at the Summit.

LAM Foundation, Booth 1456
The LAM Foundation seeks safe and effective treatments and, ultimately, a cure, for lymphangioleiomyomatosis through advocacy and research funding. Together with the Eshelman Institute for Innovation, the LAM Foundation is funding “The Air We Breathe Campaign,” a patient-led initiative that aims to educate emergency room, obstetric and gynecologic, and pulmonary specialists about the new ATS and Japanese Respiratory Society LAM clinical practice guidelines, published in September 2016.

The campaign, which includes a patient video and an electronic CME program, will complete its final phase at the ATS International Conference. Stop by Booth 1456 to learn about the guidelines and CME, share contact information, and be alerted when the next ATS guidelines for LAM are published.

Foundation for Sarcoidosis Research, Booth 1156
The Foundation for Sarcoidosis Research is the nation’s leading nonprofit organization dedicated to finding a cure for this disease and to improving care for sarcoidosis patients. Since its establishment in 2000, the FSR has fostered more than $3 million in sarcoidosis-specific research efforts, and has worked diligently to provide resources to thousands.

The FSR recently announced funding research for the development of a sarcoidosis disease model. The lack of a viable disease model has been a major limiting factor in discovering new insights into the pathogenesis of sarcoidosis. This grant will serve to spur additional research and will help bridge funding for much-needed larger investments in the disease model from industry, academia, and venture philanthropy. Learn more about sarcoidosis and FSR’s commitment to finding a cure at Booth 1156.

Insmed: A Thousand Words About NTM, Booths 1909, 2006
Insmed is committed to improving the lives of patients with serious and rare diseases, such as nontuberculous mycobacteria, or NTM, a chronic and debilitating lung condition that can get progressively worse. In the U.S., there are an estimated 86,000 people suffering from NTM. Patients with structural lung disease, such as bronchiectasis or COPD, could be at risk.

“A Thousand Words About NTM” is a disease awareness initiative in which patients were paired with artists to create one-of-a-kind original artwork. These works of art have helped patients communicate what they have often struggled to put into words—the long, difficult journey to an NTM diagnosis. This unique project strives to raise awareness about NTM in the minds of physicians and could help more people get diagnosed sooner.

Visit Booths 1909 and 2006 to see the evocative artwork and learn more about NTM.

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