ATS PAR Path: Connect with the Patient Perspective


Advocates from the Hermansky-Pudlak Syndrome Network (center) will be among the participants in the ATS PAR Path. (Photo: Robert Wilson/RC Photographic Productions)

Patients and their families are central to the mission, activities, and programs of the ATS. Throughout the conference, patients will share their experiences during select symposia to add their perspectives to highly technical topics. Attendees will also be able to connect with patient interest groups involved in the ATS Public Advisory Roundtable (ATS PAR) in the Exhibit Hall at the ATS PAR Path.

ATS PAR, which was established in 2001, is a partnership with organizations representing persons affected by respiratory diseases, sleep-related conditions, or related critical illnesses. The group collaborates with the ATS to advance shared educational, research, patient care, and advocacy goals.

Organizations taking part in the ATS PAR Path will provide information about how they might assist your patients. One such organization is the ATS PAR partner the LAM Foundation, which is celebrating its 20th anniversary. For the past two decades, the LAM Foundation has funded more than 105 projects, including the MILES Trial, the first treatment trial for LAM. Learn more about them in Booth 815.

For Your Patients and You: Meet-the-Experts
The ATS PAR will host its ninth annual Meet-the-Experts patient-family forum  during ATS 2015. The event gives patients the opportunity to learn from and speak with leading physicians, researchers, and community organizers about specific disease topics. This year’s event will focus on “Lungs and Environmental Health,” and will be from 10 a.m. to 2 p.m. on Saturday, May 16, at the Sheraton Denver Downtown Hotel, Plaza Ballrooms and Governors Square, Concourse Level, 1550 Court Place.

After presentations from seven physicians, attendees will take part in breakout sessions focusing on pulmonary hypertension, LAM/tuberous sclerosis, sarcoidosis, scleroderma, pulmonary fibrosis, rare lung diseases, children’s ILD, and Alpha-1 (A1AD). The seven experts participating will be available to answer questions.

Be sure to add these exhibitors your itinerary.

ATS Public Advisory Roundtable

  • Alpha-1 Foundation—Booth 811
  • Asthma and Allergy Foundation of America
  • Children’s Interstitial Lung Disease Foundation, Inc.
  • Coalition for Pulmonary Fibrosis—Booth 906
  • Cystic Fibrosis Foundation
  • Emphysema Foundation for Our Rights to Survive
  • Foundation for Sarcoidosis Research—Booth 803
  • Hermansky-Pudlak Syndrome Network—Booth 914
  • The LAM Foundation—Booth 815
  • Lung Transplant Foundation—Booth 801
  • Lymphangiomatosis & Gorham’s Disease Alliance—Booth 813
  • NTM Info and Research, Inc.—Booth 910
  • Pulmonary Hypertension Association—Booth 805
  • Scleroderma Foundation—Booth 807
  • Tuberous Sclerosis Alliance—Booth 912